Kate has been doing well in rehab. She is talking better, walking better, and has more energy than she did last week, and we now expect that she will be able to go home tomorrow (Monday 7/25). That being said, she still requires a lot of support and cannot be left alone, so we are going to need a lot of help in the coming weeks.
In particular, if you are in a position to bring by some food we would greatly appreciate it. It would be best if you could bring dinner for 3, with no mushrooms, in freezer-ready containers. We will also be able to use your help performing errands, shopping, and cleaning. We will be using MealTrain to schedule helpers… watch for an email from me as soon as we figure out our schedule.
We are planning to have some kind of home health care. Unfortunately, our first pick agency couldn’t work us into their schedule and our second choice hasn’t yet returned our call. We hope to hear from them on Monday.
In addition to home health care for Kate’s daily activities, she’ll be getting visits at home from physical, occupational, and speech therapists several times a week. Eventually this will shift to outpatient therapy and then, as she gets more functional, taper off to nothing.
We finally got a visit from the oncologist with the pathology report. To no one’s surprise, the new tumor is another glioblastoma. They’ve sent off a sample to Foundation One for genetic testing, which may identify some additional options for therapy going forward. In the meantime we will focus on recovering from the surgery and reducing her steroid dose (currently 12mg per day, down from 16 last week). In the next few weeks we’ll get the Foundation One results back and have another MRI and we will know more about what kind of treatment she’ll get in the coming months.
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