It’s been kind of two steps forward, one step back this month. Kate woke up one morning with chest pains and we went to the emergency room. They kept her in the hospital overnight for observation; it turned out not to be a heart attack, but was still a stressful and exhausting experience.
We also tried reducing the steroid dose again, and again this resulted in a return of the aphasia and other symptoms so we went back to the previous dose. She’s much better now, but after all that I feel that we’re basically back where we were at this time last month. We won’t be trying that again any time soon, unless there’s some solid evidence that she doesn’t need the higher dose any more.
We did get another MRI this month. We were both pretty nervous about the results, but when we saw the scan it was were pretty much the same as the last one, with some improvements. The areas of “enhancement” are a bit smaller, one of the spots went away completely, and there’s no indication of increased blood flow (associated with tumor growth). This is good news.
Also good news: we took a trip to Las Vegas, which went well. We saw three shows, ate many excellent meals, visited the Mob Museum, and goggled at the architecture. We did not gamble at all. It was a pretty laid-back trip by our usual standards, but we were exhausted when we came home; I’m really not sure whether or not we will be up for the square dance convention in late May. We’ll play it by ear based on our energy levels.
All in all, Kate is generally doing well. She can’t drive and can’t walk very far or very fast, but she’s been cooking and today she even took a trip on the bus while I was at yoga class. We hope for continued improvement in the months to come. If you can come by for a visit or send a card or some cookies, please do so.
@daviddlevine This all sounds like good news. You are both in our thoughts, and we hope to see you soon!
Glad to hear she’s holding her own, backed up by the MRIs, sounds like. I check in daily for updates, telling you just to let you know at least 1 person in Omaha is keeping tabs! Hooray for progress, however halting!